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Papers, Publications, and Briefs

Below are selected papers, publications and briefs featuring the National Survey of Children's Health and the National Survey of Children with Special Health Care Needs.

Selected Publications

Poverty, Toxic Stress, and Education in Children Born Preterm
Nursing Research. Published on July/August 2019

Family Resilience And Connection Promote Flourishing Among US Children, Even Amid Adversity
Health Affairs. Published May 2019.

Access to the Medical Home Among Children With and Without Special Health Care Needs
Pediatrics. Published on November 30, 2018

The Prevalence of Parent-Reported Autism Spectrum Disorder Among US Children
Pediatrics. Published online November 30, 2018

School Readiness among U.S. Children: Development of a Pilot Measure
Child Ind Res. Published online August 9, 2018

Health Care Utilization and Unmet Need Among Youth With Special Health Care Needs
Journal of Adolescent Health. Published online August 2, 2018

Prevalence and Variation of Developmental Screening and Surveillance in Early Childhood.
JAMA Pediatr. Published online July 9, 2018 

Bullying Victimization and Perpetration among U.S. Children and Adolescents: 2016 National Survey of Children's Health
Journal of Child and Family Studies. Published online June 27, 2018

Leisure Participation Patterns for School Age Youth with Autism Spectrum Disorders: Findings from the 2016 National Survey of Children's Health
Journal of Autism and Developmental Disorders. Published online June 16, 2018

Prevalence of Brain Injuries among Children with Special Healthcare Needs
The Journal of Pediatrics. Published online June 6, 2018

Relationships That Heal: Building a Community to Combat Childhood Trauma
NYU Steinhardt School. Published online April 23, 2018

Prevalence of Parent-Reported ADHD Diagnosis and Associated Treatment Among U.S. Children and Adolescents, 2016.
 J Clin Child Adolesc Psychol, March-April 2018

The Design and Implementation of the 2016 National Survey of Children’s Health.
Matern Child Health J. Published online May 9, 2018

Example Presentations from the DRC

Advancing Improvements in MCH Outcomes Using Local Area Estimates from the National Survey of Children's Health: An Overview of Methods and Field Applications. The CityMatCH Leadership & MCH Epidemiology Conference (MCH Epi) September 14, 2016. 

A Profile of Health Problems and Quality of Care for Publicly vs. Privately Insured Children in the US. Pediatric Academic Societies (PAS) April 28, 2014.

Putting Data into Action - The Data Resource Center for Child and Adolescent Health.Division of Services for Children with Special Health Needs (DSCSHN) Webinar. February 25, 2014.             

Selected Presentations from HRSA MCHB

Publications from Data Users
Predictors of coordinated and comprehensive care withing a medical home for children with special healthcare (CSHCN) needs
June 2018, Frontiers in Public Health, Walker, A., Peden, J.G., Emter, M., Colquitt, G.
The purpose of this study was to examine predictors of coordinated and comprehensive care within a medical home among children with special health care needs (CSHCN).

The importance of environment: Neighborhood characteristics and parent perceptions of child health
April 2018, Journal of Child Health Care, Cronin,C., Gran, B.K.
This article questions whether and how environment influences perceptions of health, specifically parents’ perceptions of their children’s health. Based on data from the 2011–2012 US National Survey of Children’s Health, this study investigates how parents’ views of their neighborhoods (such as safety, social support, amenities, and detracting elements) shape perceptions of their child’s health

Comparing impact on the family and insurance coverage in children with cerebral palsy and children with another special healthcare need
January 2018, Child: Care, Health and Development, Schaible, B., Colquitt, C., Carnes, A., Li, L., Moreau, N.
The purpose of this study was to identify factors associated with differences in insurance coverage and impact on the family of children with CP and other CHSCN.

Urban vs. Rural differences in insurance coverage and ompact on employment among families caring for a child with cerebral palsy
April 2017, Cogent Medicine, Schaible, B.J., Colquitt, G., Li, L., Caciula, M., Moreau, N.G.
The purpose of this study was to examine urban vs. rural differences on the relationship between family contextual variables and adequacy of insurance coverage and impact on employment for among families with a child with Cerebral Palsy from a nationally representative sample.

Presentations from Data Users

Examining the Impact of Child Externalizing Behaviors on Parental Stress in Families of Children with an Autism Spectrum Disorder (ASD)
June 2017, Journal of Clinical Child and Adolescent Psychology (JCCAP) Future Directions Forum, Feeney K., Powers M., Layer-Whelan S., Kromash R., Hughes C., James D., & Felton J.
This poster looks at the impact of externalizing behaviors on parental stress among children with and without ASD, using data from the 2011/12 National Survey of Children's Health.

Prevalence of Adverse Childhood Experiences in Latino Immigrant Children
May 2017, Pediatric Academic Societies (PAS) Meeting, Loria H. & Caughy M.
This poster examines the prevalence differences in overall and individual ACEs among 1st, 2nd, and 3rd generation Latino American children.

Residential Mobility and Well-beiing Among School-age Children
May 2017, Pediatric Academic Societies (PAS) Meeting, Gjelsvik A., Rogers M.L., Song L., Field A., & Vivier A.
This poster assessed the association of residential mobility with flourishing (self-regularion/curiosity and school engagement) among children age 6-17.

Adverse Childhood Experiences as an Effect Modifier for the Association Between Traumatic Brain Injury and Disruptive Behavior Disorders: Results from the 2011 National Survey of Children's Health
October 2016, American Public Health Association (APHA) Annual Meeting and Exposition, McFarlane T.D. & Aalsma, M.
This poster looks at the effects of trauma from TBI and ACEs, individually and together by examining the association between TBI and/or ACEs and behavioral disorders such as ADD/ADHD and Oppositional Defiant Disorder/Conduct Disorders.

Predicting Care Coordination in the Presence of a Comorbid Developmental Disability or Psychosocial Problem.
September 2016, Society for Developmental & Behavioral Pediatrics Annual Meeting, Iskander, J.M., Monnin, K.S., & Wildman, B.G.
This poster uses data from the 2009/12 National Survey of Children with Special Healthcare Needs to examine whether comorbid psychosocial problems or developmental disabilities affected care coordination among children with chronic illnesses.

Predicting Difficulty Making and Keeping Friends for Children with Special Health Care Needs.
April 2016, Tennessee Association of Family and Consumer Sciences Conference, Sisk, C.
This presentation uses data from 2009/2010 National Survey of Children with Special Health Care Needs to investigate for CSHCN if there was a relationship between difficulty making and keeping friends and 14 other independent variables.

The National Survey of Children’s Health and Behavioral Health Measures
June 2015, National Academies of Science, Kogan, M.
This presentation by the US Department of Health and Human Services gave an overview of how national surveys such as the NSCH and NS-CSHCN can be used for meeting Healthy People 2020 objectives, federal policy and program development, Title V needs assessments and funding, state-level planning and program development, and scientific research. The Data Resource Center is listed as a resource for accessing survey data.