Survey Results

Survey Items: Survey instrument item number for children 12-17 years: C4; D13, D14, D15c,d
Variable name in public use data file: CHANGEAGE; DOCPRIVATE; GAINSKILLS; TREATADULT; TREATCHILD

Denominator: Adolescents with special health care needs, ages 12 through 17

Numerator: Adolescents with special health care needs, ages 12 through 17, whose families report that they received the services necessary to transition to adult health care

Revisions and Changes: This measure was previously included in the 2009/10 NS-CSHCN, but it was substantially different than the current measure in the 2016 NSCH. New items were added to the measure for the 2016 NSCH, including: doctor spoke with the child privately; doctor worked with the child about gaining skills to manage their health and health care and doctors worked with the child to help them understand their healthcare changes. For more information on content changes, click here .
Due to changes in the survey’s mode of data collection and sampling frame, as well as adjustments to item wording where necessary, MCHB alerts data users that it is not possible to compare estimates from the redesigned survey to those from previous iterations of the NSCH or NS-CSHCN or to conduct related trend analyses. The redesigned NSCH will support trend analyses beginning with data from 2016.

Additional Notes: In order to meet the criteria for this measure, youth with special health care needs 12-17 years old must meet three components: 1) doctor spoke with child privately without an adult in the room during last preventive check-up; 2) if a discussion about transitioning to adult care was needed it must have happened; and 3) doctors actively worked with child to gain skills and understand changes in health care. If a child has at least one valid positive response to any of these components and the remainder of the components were missing or legitimately skipped, these children were categorized as receiving adequate transition to adult healthcare in the 2016 scoring of this measure. Respondents with "missing" to all items were set to missing. Transition questions were asked among all children 12-17 years of age; however, the DRC provides two separate transition measures based on the child's special health care need status.

Treatment of Unknown Values: Missing values due to non-response or a “don’t know” response are not included in the denominator when calculating prevalence estimates and weighted population counts displayed in the data query results table. In the majority of cases, the proportion of missing values is less than 2%. Exceptions are noted in the form of a Data Alert at the bottom of a results table. The exclusion of these values does not change the prevalence estimates (%) and only marginally affects the weighted population counts (Pop. Est.). If missing cases are handled in any other way, details can be found in the "Additional notes" section above.

History and Development:
Overview of the Title V Block Grant: The Title V Maternal and Child Health (MCH) Services Block Grant Program is a federal-state partnership in 59 states and jurisdictions to improve the health and well-being of MCH populations through the development of public health systems of care which are family-centered, community-based and culturally appropriate. To improve accountability and demonstrate the impact of the Title V Block Grant Program, significant revisions were implemented with the 2015 application and annual report guidance, which included changes to National Performance Measures (NPM) and National Outcome Measures (NOM). More information about the block grant can be obtained at the MCHB website.
About NSCH: The Maternal and Child Health Bureau (MCHB) funds and directs the National Survey of Children’s Health (NSCH), and develops survey content in collaboration with the U.S. Census Bureau and a Technical Expert Panel. The Technical Expert Panel consists of experts in survey methodology and children’s health, federal and state stakeholders, clinicians and researchers. The U.S. Census Bureau conducts the survey, oversees the sampling, and produces a final data set of survey results. Respondents’ cognitive understanding of the survey questions was assessed during the pretest phase and revisions were made. Previously validated questions and scales are used when available.
Prior to 2016, the NSCH and the National Survey of Children with Special Health Care Needs were each conducted three times as interviewer-assisted telephone surveys using random digit dial sampling. In 2016, the two surveys were combined into a single self-administered questionnaire. Due to decline in the number of households with landline telephones, the NSCH now utilizes an address-based sampling method to select participating households, thus all invitations are sent by mail. Participants may choose to complete the survey either online using a secure website or a mailed paper version of the survey. All final data components are verified by the Census Bureau, MCHB and DRC/CAHMI staff prior to public release. More information can be found in the “Review the Surveys” section of this website.