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Nationwide All States All Regions Midwest Northeast South West
Survey Items: FSD5_C
Denominator: CSHCN 6-17 years old with current autism spectrum disorder, developmental delay, and/or intellectual disability
Numerator: Not true; Somewhat true; Certainly true
Revisions and Changes: N/A
Additional Notes: The Strength and Difficulties Questionnaire (SDQ) questions are copyrighted by Robert Goodman, Ph.D., FRCPSYCH, MRCP and included in the Pathways survey with permission. These questions may be used without charge and without seeking separate permission provided the wording is not modified, all the questions are retained, and Dr. Goodman's copyright is acknowledged.
Treatment of Unknown Values: Unknown values (responses coded as 'refused', 'don't know', or system missing) are not included in the denominator when calculating prevalence estimates and weighted population counts displayed in the data query results table. In most cases, the proportion of unknown values is low (<5%) and the exclusion of these values does not change the percent estimates and only marginally affects the weighted population counts (Weighted Est.). Exceptions are noted in the form of a Data Alert at the bottom of a results table.
History and Development: The National Institute of Mental Health led the development of the Pathways survey, indicators, and performance measures, in collaboration with the National Center for Health Statistics (NCHS) and a national technical expert panel. The expert panel includes representatives from other federal agencies, family organizations, and child health and developmental disability researchers. Previously validated questions and scales are used when available. Respondents’ cognitive understanding of the survey questions were assessed during the pretest phase and revisions were made as required.
C.I. = 95% Confidence Interval. Percentages and population estimates (Pop.Est.) are weighted to represent child population in US.
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With funding and direction from the Maternal and Child Health Bureau, the National Survey of Children’s Health was conducted by the United States Census Bureau. CAHMI is responsible for the analyses, interpretations and conclusions included on this cite.
Suggested citation format: Survey of Pathways to Diagnosis and Services. Pathways 2011. Data query from the Child and Adolescent Health Measurement Initiative, Data Resource Center for Child and Adolescent Health website. Retrieved [mm/dd/yy] from [www.childhealthdata.org].