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Survey Items: National Survey of Children with Special Health Care Needs (NS-CSHCN) items: C8Q01_A, C8Q01_B, C8Q01_C
Denominator: CSHCN 6-17 years old with current autism spectrum disorder, developmental delay, and/or intellectual disability who were insured at the time of the survey
Numerator: Current insurance is adequate; Current insurance is not adequate
Revisions and Changes: These items are the same as in the 2005/06 NS-CSHCN.
Additional Notes: To be scored as having inadequate insurance children have responses of never or sometimes to each item. That is their current insurance coverage never/sometimes covers services and/or never/sometimes has reasonable out of pocket expenses and/or never/sometimes allows CSHCN to see needed health providers. Valid responses on all three items are required. If any item is don't know or refused, then child is set to missing.
Treatment of Unknown Values: Unknown values (responses coded as 'refused', 'don't know', or system missing) are not included in the denominator when calculating prevalence estimates and weighted population counts displayed in the data query results table. In nearly every case, the proportion of unknown values is less than 1% and the exclusion of these values does not change the prevalence estimates (%) and only marginally affects the weighted population counts (Weighted Est.). Exceptions are noted in the form of a Data Alert at the bottom of a results table.
History and Development: The Maternal and Child Health Bureau leads the development of the NS-CSHCN survey, indicators and performance measures, in collaboration with the National Center for Health Statistics (NCHS) and a national technical expert panel. The expert panel includes representatives from other federal agencies, state Title V leaders, family organizations, and child health researchers. Previously validated questions and scales are used when available. Respondents’ cognitive understanding of the survey questions is assessed during the pretest phase and revisions made as required. All final data components are verified by NCHS and DRC/CAHMI staff prior to public release.
C.I. = 95% Confidence Interval. Percentages and population estimates (Pop.Est.) are weighted to represent child population in US.
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With funding and direction from the Maternal and Child Health Bureau, the National Survey of Children’s Health was conducted by the United States Census Bureau. CAHMI is responsible for the analyses, interpretations and conclusions included on this cite.
Suggested citation format: Survey of Pathways to Diagnosis and Services. Pathways 2011. Data query from the Child and Adolescent Health Measurement Initiative, Data Resource Center for Child and Adolescent Health website. Retrieved [mm/dd/yy] from [www.childhealthdata.org].