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Survey Items: Derived from questions: C6Q07, C6Q0A_B, C6Q0A_C, C6Q0A, C6Q0A_D, C6Q0A_E, C6Q0A_F, C6Q08
Denominator: CSHCN ages 12-17 only
Numerator: CSHCN ages 12-17 whose doctors usually/always encourage increasing responsibility for self-care AND (when needed) have discussed transitioning to adult health care, changing health care needs, and how to maintain insurance coverage
Revisions and Changes: In the 2005-2006 version of the NS-CSHCN, significant wording changes and new additions were made to the set of questions used to assess Transition to Adulthood. The result is an improved and more robust assessment of this important concept. The 2001 version of the outcome is based on CSHCN ages 13-17; the 2005/06 outcome is calculated for CSHCN ages 12-17. Take these changes into consideration when comparing results across survey years. See Additional Notes section below for more details.
Additional Notes: Technical expert panel review of the 2001 NS-CSHCN methods for assessing transition to adulthood led to significant revisions and additions to the 2005-2006 version of these questions. In particular, filter questions were added to identify CSHCN who needed the services being assessed and a new question was added to assess whether health care providers help CSHCN to take increasing responsibility for self-care.
Treatment of Unknown Values: Unknown values (responses coded as 'refused', 'don't know', or system missing) are not included in the denominator when calculating prevalence estimates and weighted population counts displayed in the data query results table. In nearly every case, the proportion of unknown values is less than 1% and the exclusion of these values does not change the prevalence estimates (%) and only marginally affects the weighted population counts (Weighted Est.). Exceptions are noted in the form of a Data Alert at the bottom of a results table.
History and Development: The Maternal and Child Health Bureau leads the development of the NS-CSHCN survey, indicators and performance measures, in collaboration with the National Center for Health Statistics (NCHS) and a national technical expert panel. The expert panel includes representatives from other federal agencies, state Title V leaders, family organizations, and child health researchers. Previously validated questions and scales are used when available. Respondents’ cognitive understanding of the survey questions is assessed during the pretest phase and revisions made as required. All final data components are verified by NCHS and DRC/CAHMI staff prior to public release.
C.I. = 95% Confidence Interval. Percentages and population estimates (Pop.Est.) are weighted to represent child population in US.
DATA ALERT: Click here for information comparing the 2001 and 2005/06 versions of Outcome #6.
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With funding and direction from the Maternal and Child Health Bureau, the National Survey of Children with Special Health Care Needs was conducted by the Centers for Disease Control and Prevention’s National Center for Health Statistics. CAHMI is responsible for the analyses, interpretations, presentations and conclusions included on this site.
Suggested citation format: National Survey of Children with Special Health Care Needs. NS-CSHCN 2005/06. Data query from the Child and Adolescent Health Measurement Initiative, Data Resource Center for Child and Adolescent Health website. Retrieved [mm/dd/yy] from [www.childhealthdata.org].