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Nationwide All States All Regions Alabama Alaska Arizona Arkansas California Colorado Connecticut Delaware District of Columbia Florida Georgia Hawaii Idaho Illinois Indiana Iowa Kansas Kentucky Louisiana Maine Maryland Massachusetts Michigan Minnesota Mississippi Missouri Montana Nebraska Nevada New Hampshire New Jersey New Mexico New York North Carolina North Dakota Ohio Oklahoma Oregon Pennsylvania Rhode Island South Carolina South Dakota Tennessee Texas Utah Vermont Virginia Washington West Virginia Wisconsin Wyoming Virgin Islands HRSA Region I HRSA Region II HRSA Region III HRSA Region IV HRSA Region V HRSA Region VI HRSA Region VII HRSA Region VIII HRSA Region IX HRSA Region X
Survey Items: A total of 19 different survey questions are used to develop the overall composite score for having a Medical Home (see Additional Notes section for more information)
Denominator: CSHCN ages 0 -17
Numerator: CSHCN receiving adequate care on EVERY needed component of medical home assessed by the survey
Revisions and Changes: In the 2005-2006 version of the NS-CSHCN, significant changes and additions were made to the set of questions used to assess the Care Coordination component of the medical home composite measure. The result is an improved and more robust assessment of this important component. There were minor changes in 2005-2006 to several other questions used in constructing the medical home summary score. Take these changes into consideration when comparing results across survey years.
Additional Notes: The American Academy of Pediatrics' description of a "medical home" lists seven defining components: accessible, continuous, comprehensive, family-centered, coordinated and compassionate. Ideally, these seven components are delivered by doctor or other health professional who knows the child well. Five of the 7 components of medical home and the presence of a personal doctor or nurse are assessed by the National Survey of CSHCN. The overall medical home measure is a composite score derived from five different subparts based on 19 different survey items. To qualify as having a medical home, a child must have a personal doctor or nurse and meet the criteria for adequate care on every needed component. For additional details on medical home, including SAS and SPSS scoring programs, please email: cahmi@ohsu.edu
Treatment of Unknown Values: Unknown values (responses coded as 'refused', 'don't know', or system missing) are not included in the denominator when calculating prevalence estimates and weighted population counts displayed in the data query results table. In nearly every case, the proportion of unknown values is less than 1% and the exclusion of these values does not change the prevalence estimates (%) and only marginally affects the weighted population counts (Weighted Est.). Exceptions are noted in the form of a Data Alert at the bottom of a results table.
History and Development: The Maternal and Child Health Bureau leads the development of the NS-CSHCN survey, indicators and performance measures, in collaboration with the National Center for Health Statistics (NCHS) and a national technical expert panel. The expert panel includes representatives from other federal agencies, state Title V leaders, family organizations, and child health researchers. Previously validated questions and scales are used when available. Respondents’ cognitive understanding of the survey questions is assessed during the pretest phase and revisions made as required. All final data components are verified by NCHS and DRC/CAHMI staff prior to public release.
C.I. = 95% Confidence Interval. Percentages and population estimates (Pop.Est.) are weighted to represent child population in US.
DATA ALERT: Click here for information comparing the 2001 and 2005/06 versions of Outcome #2.
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With funding and direction from the Maternal and Child Health Bureau, the National Survey of Children with Special Health Care Needs was conducted by the Centers for Disease Control and Prevention’s National Center for Health Statistics. CAHMI is responsible for the analyses, interpretations, presentations and conclusions included on this site.
Suggested citation format: National Survey of Children with Special Health Care Needs. NS-CSHCN 2005/06. Data query from the Child and Adolescent Health Measurement Initiative, Data Resource Center for Child and Adolescent Health website. Retrieved [mm/dd/yy] from [www.childhealthdata.org].