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Survey Items: C6Q21, C6Q22, C6Q23, C6Q24
Denominator: CSHCN age 0 -17 years
Numerator: CSHCN whose families usually or always feel that they are partners in decision making around issues important to their child's health; Outcome not successfully achieved
Revisions and Changes: The items used to develop this measure were revised substantially between 2005/06 and 2009/10. This measure is now based on whether CSHCN have families who usually or always feel that they: 1) discuss with providers a range of options to consider for their child's treatment; 2) are encouraged to ask questions or raise concerns; 3) it is easy to ask questions or raise concerns; and 4) their health care providers consider and respect what treatment choices the parent feels would be best for child. This outcome should not be compared with the results from outcome #1 from the 2005/06 NS-CSHCN.
Additional Notes: To positively meet this indicator, responses of usually or always to all items must be scored. Any response of never or sometimes to any item would score the indicator in the negative. Responses to all items were required. All repondents with don't know or refused to any item were set to missing.
Treatment of Unknown Values: Unknown values (responses coded as 'refused', 'don't know', or system missing) are not included in the denominator when calculating prevalence estimates and weighted population counts displayed in the data query results table. In nearly every case, the proportion of unknown values is less than 1% and the exclusion of these values does not change the prevalence estimates (%) and only marginally affects the weighted population counts (Weighted Est.). Exceptions are noted in the form of a Data Alert at the bottom of a results table.
History and Development: The Maternal and Child Health Bureau leads the development of the NS-CSHCN survey, indicators and performance measures, in collaboration with the National Center for Health Statistics (NCHS) and a national technical expert panel. The expert panel includes representatives from other federal agencies, state Title V leaders, family organizations, and child health researchers. Previously validated questions and scales are used when available. Respondents’ cognitive understanding of the survey questions is assessed during the pretest phase and revisions made as required. All final data components are verified by NCHS and DRC/CAHMI staff prior to public release.
C.I. = 95% Confidence Interval. Percentages and population estimates (Pop.Est.) are weighted to represent child population in US.
DATA ALERT: See an overview of Outcome #1 and its relationship to healthy development for CSHCN over the Life Course.
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With funding and direction from the Maternal and Child Health Bureau, the National Survey of Children with Special Health Care Needs was conducted by the Centers for Disease Control and Prevention’s National Center for Health Statistics. CAHMI is responsible for the analyses, interpretations, presentations and conclusions included on this site.
Suggested citation format: National Survey of Children with Special Health Care Needs. NS-CSHCN 2009/10. Data query from the Child and Adolescent Health Measurement Initiative, Data Resource Center for Child and Adolescent Health website. Retrieved [mm/dd/yy] from [www.childhealthdata.org].