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Increasing Prevalence of Parent-Reported Attention-Deficit/Hyperactivity Disorder Among Children -- United States, 2003 and 2007
Report
This report describes the increase in parent-reported ADHD diagnosis in children during 2003-2007 to further characterize the substantial impact of ADHD on families.

Overview of Surveys


This table provides a visual overview of the type of information included in each survey available on the Data Resource Center (DRC). Click on the name of each survey to find out additional information.

National Survey of Children’s Health (NSCH): 2016
         

 


National Survey of Children’s Health (NSCH): 2016
 

What is it?

The NSCH is a national survey which provides data on multiple, intersecting aspects of children’s health and well-being. Starting in 2016, the NSCH consolidated content from two surveys, the previous NSCH survey and the National Survey of Children with Special Health Care Needs.

Topics in survey

Child and family demographics; Children’s physical, oral, and mental health status, including health conditions and functional difficulties; Health insurance status, adequacy, and type of coverage; Access to and use of health care services; Medical home; Transition to adult health care; Early childhood (0-5 years) and middle childhood and adolescent-specific information (6-17 years); Family health and activities; Impact of child’s health on family; Parental perceptions of neighborhood characteristics; Access to community-based services.

Survey Sponsorship

Primary funding is provided by the United States Department of Health and Human Services (HHS), Health Resources and Services Administration’s (HRSA) Maternal and Child Health Bureau (MCHB). Additional funding for specific questions is provided by the Centers for Disease Control and Prevention’s (CDC) National Center on Birth Defects and Developmental Disabilities (NCBDDD) and the United States Department of Agriculture’s (USDA) Food and Nutrition Service. A national Technical Expert Panel also advises HRSA MCHB on the survey content and design.
 Survey Design

Please see the FAQs and Methodology Report for more information about the design and implementation of the 2016 NSCH.

Data Collection

Data are collected by the United States Census Bureau’s Associate Director for Demographic Programs on behalf of the United States Department of Health and Human Services (HHS), Health Resources and Services Administration’s (HRSA) Maternal and Child Health Bureau (MCHB).

Periodicity

Annual survey beginning in 2016.

Population sampled

Non-institutionalized  children in the US ages 0-17 years.

Sample size 

50, 212 children in 2016.

Representativeness

The data are weighted to be representative of the US population of non-institutionalized children ages 0-17 years at the state and national levels.

Regions

Nationwide, all 50 states and the District of Columbia.

Subgroups

Age, sex, race/ethnicity, parental education, primary household language, children with special health care needs, complexity of health care needs, family structure, child and parental nativity, geographic location (i.e., state, metropolitan statistical area, core-based statistical area), household income.


National Survey of Children’s Health (NSCH): 2003, 2007, 2011/12
National Survey of Children with Special Health Care Needs (NS-CSHCN) (2001, 2005/6, 2009/10)   

 

National Survey of Children’s Health (NSCH): 2003, 2007, 2011/12

National Survey of Children with Special Health Care Needs (NS-CSHCN) (2001, 2005/6, 2009/10) 

What is it?

A national survey which provides overall picture of children’s health, with information on families and neighborhoods

A national survey which focuses on children with special health care needs, their specific health conditions, and access to care

Topics in survey

Physical and emotional health; factors that may relate to well-being of children, including medical homes, family interactions, parental health, school experiences, and safe neighborhoods.

Assesses overall health and health status of CSHCN, including medical home, adequate health insurance, access to needed services, and adequate care coordination. Other topics include functional difficulties, transition services, and shared decision-making.

Survey Design and Sponsorship

Maternal and Child Health Bureau in partnership with National Center for Health Statistics, Child and Adolescent Health Measurement Initiative, and a National Technical Expert Panel

Maternal and Child Health Bureau in partnership with National Center for Health Statistics, Child and Adolescent Health Measurement Initiative, and a National Technical Expert Panel

Data Collection
National Center for Health Statistics
National Center for Health Statistics

Periodicity

Every 4 years. Data available on DRC: 2003, 2007, 2011/12

Administered 3 times in 2001, 2005/6, 2009/10. The survey has been integrated into the NSCH

Population sampled

Non-institutionalized children in the US ages 0-17 years

Non-institutionalized CSHCN in the US ages 0-17 years

Sample size range

Between 91,000 and 102,000

Between 38,000 and 40,000

Representative

Weighted to be representative of the US population of non-institutionalized children ages 0-17

Weighted to be representative of the US population of non-institutionalized CSHCN ages 0-17

Regions

Nationwide, all 50 states

Nationwide, all 50 states

Subgroups

Age, sex, race/ethnicity, parental education, primary language for Hispanic CSHCN, # CSHCN Screener criteria met, specific types special health needs, emotional/ behavioral/ developmental issues, # functional difficulties, family structure, insurance- (status, type, consistency, adequacy), household income, presence of medical home



National Health Interview Survey – Complementary and Alternative Medicine (NHIS-CAM) 2011/12  
Survey of Pathways to Diagnosis and Services (Pathways) 2011
National Health Interview Survey - Child Component 2010, 2011/12, 2013, 2014, 2011-2014 combined

 

National Health Interview Survey – Complementary and Alternative Medicine (NHIS-CAM) 2011/12

Survey of Pathways to Diagnosis and Services (Pathways) 2011

National Health Interview Survey - Child Component 2010, 2011/12, 2013, 2014, 2011-2014 combined

What is it?

A supplement of a national survey, which focuses on children who use complementary and alternative medicine

A follow-back survey to the NS-CSHCN with parents of children identified as having Autism and related conditions, etc.

A national survey which provides a broad range of information about the health status and health care of the US civilian non-institutionalized household population including all adults and children in the family

Topics in survey

Contains information on complementary and alternative medicine use among children in the US; questions include 34 specific CAM modalities, insurance coverage and out-of-pocket cost for visits to CAM practitioners, providers, classes or trainings, reasons for and benefits of CAM use

Parents were asked about the emergence of symptoms, the context of the original diagnoses, the providers who made the diagnoses, the child’s current diagnostic status, the types of clinical treatments/interventions and educational services used to address developmental delays, and other parental concerns or perspectives.

 

Since 1997, the NHIS questionnaire has consisted of a Core and variable Supplements. The Household Composition collects information about basic demographic characteristics of all persons in the household. The Family Core component collects information about socio-demographic characteristics, health, activity limitations, injuries, health insurance coverage, use of and access to health care services for all persons in the family. The Sample Core obtain additional information on health status, health care services, and behavior for a randomly selected adult or child from each family.

Survey Design and Sponsorship

National Center for Complementary and Integrative Health (formerly NCCAM) and National Center for Health Statistics

Maternal and Child Health Bureau; National Institute of Mental Health in partnership with National Center for Health Statistics

National Center for Health Statistics



Data Collection
National Center for Health Statistics

National Center for Health Statistics National Center for Health Statistics

Periodicity

Administered two times, once in 2007 and again 2012, as a supplement to the NHIS

Administered one time in 2011 as a follow-back supplement to the 2009/10 NS-CSHCN

Annual survey has been conducted since 1957. Data available on DRC: 2013, 2014, pooled year of 2011/12 and 2010-2013

Population sampled

2007: Non-institutionalized children in the US ages 0-17 years
2012: Non-institutionalized children in the US ages 4-17 years

 

CSHCN ages 6-17 years who were ever diagnosed with autism spectrum disorder, intellectual disability, or developmental delay in the 2009/10 NS-CSHCN

Civilian non-institutionalized household population including all adults and children in the family. DRC data query includes children ages 0-17 years only

Sample size range

2007: Around 10,000
2012: Around 8,000

Around 4,000

Around 10,000 children

Representative

2007: Weighted to be representative of the US population of non-institutionalized children ages 0-17
2012: Weighted to be representative of the US population of non-institutionalized children ages 4-17

Weighted to be representative of the US population of non-institutionalized CSHCN ages 6-17

Weighted to be representative of the US population of non-institutionalized children ages 0-17

Regions

Nationwide, 4 regions- Midwest, South, Northeast, West

Nationwide, 4 regions - Midwest, South, Northeast, West

Nationwide, 4 regions- Midwest, South, Northeast, West, and all 50 states from pooled year of data

Subgroups

Age, sex, race/ethnicity, family income level, chronic conditions, pain-related conditions or problems, emotional/mental/behavioral problems, # missed school days, any activity limitation, health insurance status, health insurance type, prescription medications for 3+ months, medical specialist care, ED visits, # office visits to medical health professionals, mental health care, special therapies, out-of-pocket costs for medical/dental care, medical care access problems

Age, sex, race/ethnicity, family income level, highest educational level, type of insurance, and condition group

Age, sex, race/ethnicity, family income level, highest educational level, type of insurance, rural/urban, metropolitan statistical area (MSA)